← Return to CLIPPERS: Looking to connect with others

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Becky, Volunteer Mentor (@becsbuddy)

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Nov 4, 2022 | Replies (75)

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@movingtomadison

thanks – after being brave and honest about having clippers and getting here to meet you all, I retreated… too much painful honestly. So – I threw myself into a fundraiser for daughter's school to avoid thinking about Clippers for a few weeks. now I'm getting prepared to come back in…. I find this part of my identity very difficult to integrate – and so – this is a long journey of leaning in.. and leaning out/denial… thanks for being patient with me…

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Replies to "thanks - after being brave and honest about having clippers and getting here to meet you..."

@movingtomadison integrating is so difficult! I wanted people to see me as I was, not as someone with a chronic illness that affected everything. But, now, I realize that these are my friends and they help me when needed.
I’ve also stopped calling the illness, Clippers. To me, it sounds dumb. My neurologist calls it lymphoproliferative disorder but I say I have some lesions on my brain. Then I don’t need to explain.
I work with a therapist, too. She’s been very good in helping me deal with everything. Guess we need to keep on keeping on!