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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Feb 17 10:21pm | Replies (151)

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@movingtomadison

Hi Becky - for the last 8 years, it has been a high of 60mg, down to a low of 5 mg prednisone a day and always 12.5 mg of methotrexate per week. For me, I have had 3 flares, due to going lower than 5mg prednisone per day. I'm now on 7.5 mg per day for the last 1.5 yrs and stable, with the methotrexate. You posted in January.. it's November... How did your tapering go?

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Replies to "Hi Becky - for the last 8 years, it has been a high of 60mg, down..."

@movingtomadison I seem to meet you everywhere! I’ve not been able to taper off the prednisone and, currently, I’m back up to 20 msg. The rituxan quit working and some of the lesions came back. Now we’re trying cytoxan. Luckily, my oncologist is a former coworker, so he takes good care of me. I do have some articles that might interest you and could try sending you the links.
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@movingtomadison How have you been doing? I last heard from you a week ago and would love to touch base. Becky