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Becky, Volunteer Mentor (@becsbuddy)

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Nov 4 11:04am | Replies (75)

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@becsbuddy

@balagan111 Welcome to MayoClinicConnect. This is an online information and support group for those with health issues. We’re not doctors, but we try to share experiences and support each other. I’m so sorry that your husband has also gotten Clippers. But he has you as an advocate! Great! This is a very good article about using rituxan for Clippers. My brother-in-law, who is a toxicologist sent it to me and I gave it to my doctors. https://nn.neurology.org/content/5/3/e448. I’ve had infusions every six months given at an chemotherapy infusion center . So far, so good. MayoClinicConnect has been very good for getting information about handling the myriad of symptoms like vision problems, balance problems, etc. Be sure to check out the other groups and discussions. I have a feeling that you can be of great help to others! Will you stay in touch and let us know how both of your are doing?

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Replies to "@balagan111 Welcome to MayoClinicConnect. This is an online information and support group for those with health..."

Hi Becky, that is the article I read that prompt me to call Dr Veronica Cipriani, the author. Very very nice lady!
Thank you so much and hope you all are finding something to make you all be better. Please please don’t forget to share!