Neuropathy & Exercise

Hi Chris @artscaping. Unfortunately, I just lost my detailed response to you prior to hitting post and am not up to recreating. Will give it a go tomorrow. Rest well.
Rachel

@rwinney......no way. Bummer. As well as for me I think this response is for others who face these challenges of dosage and frequency. You have gone farther than others I believe. So lead the way.

If you always have the file open and in a tab at the top, you should be ok. Sometimes it may be the last image. Also you can just reload your browser history. I don't lose them anymore. I am to wordy to want to try again. However, sometimes it is a better post the second time around.

I use to think that about husbands too. (Ha Ha for today).

Relax and be content.
Chris

😊

My 86 year old brother and my 80 year old sister (she died from pancreatic cancer three weeks ago) both had dementia. My parents died when I was in my twenties, so I don’t know if they would have had it too. My memory seems to be okay but I have some trouble with names. But I remember all the events that happen in my life so I think that I’m okay so far.

@darlintondoll Im sorry for the loss of your brother and sister . My Dad died when I was just 6 he died of coronary occlusion they called it but my brother and I thought it must have been from cholesterol and they didn't know it back then in 51 . I developed hight cholesterol and had 3 arteries blocked so they did a by pass . Im fine now on a good statin that controls it . I can go into one room forget what I went in for have to go back to other then remember so I think this and not coming up with the word you want is my problem. Names escape me till I know someone a while then I can remember so I think this is normal for the ageing process.. Sounds like all is o.k. Take care of yourself the best you can that's all we can do with the hand we are dealt . Keep your faith . Blessings

I think that we all have that same problem of going into a room and forgetting why we went there. A lot of my friends forget names too. I agree with you. It’s part of the aging process.

Without spending a lot of money, and now confined to home , because of current pandemic, and at age 89, I have purchased a 2nd hand stationary bike, and I have a couple of dumbels, I can really get my cardio working. The secret is to start slowly, ride every 2nd day, and slowly increase your time, until you are puffing. Riding the bike places nil stress on, feet,knees, ankles,hips or back. Check with your doctor for his approval. THE dumbels are great for both sexes, and for woman helps guard against osteoporosis in the shoulders. I paid only $50 (Australian ) for the bike and it is almost brand new. Dumbels, of course vary in weight, but 2nd hand, are as cheap as chips. Don't let your condition get you down, remember , the reward will get you smiling, as you acheive. Best wishes from Australia.

Hi Barry @user_che214927, good to see and hear from you again. I love your spirit! Keep it coming. Rachel

@artscaping Good morning. My eyes were bad last night and I could not re-create. I stupidly exited the post by accident after reveiving a stressful phone call. I also tend to get wordy (we are very similar) so I will try to streamline.

My opiod use of 5 mg hydrocodone did not keep up with my increasing pain. I take 1 pill every 3 hours and after 2 am getting desperate for relief again. The relief is felt with a half hour. I've been on it 3 years and naturally losing effectiveness is the nature of the opiod beast however, my neuropathy has progressed as well. Im comfortable on hydrocodone and have no negative side effects. It is an upper and wakes me up but not in a bad way. I feel exhausted from SFN, pain and Lyrica so, it is a welcomed feeling that allows me to feel alive, like my old self, while battling pain. My PCP had been hesitant to increase mg and I frankly did not want that either.

I knew 5 mg hydro wasn't enough in itself. As you know, I tried lidocaine infusions to supplement the pain but was unsuccessful. I did not want to experiment with different opiods and all the other basic neuropathy treatments. Been there, done that.
I feel fortunate to receive opiod therapy during these times and realize not everyone is as lucky.

I landed on medical marijuana as my supplement. It took alot experimenting. The pharmacist at the dispensary lined me up with products based on my current pain relief which at the time was lyrica, cymbalta and hydro. I take a 20:1 ratio (heavy THC) so, I had to be careful when cruising up the dosing chart. THC is the component that will get you high if not properly used. I found out quickly what I could not handle when I was unable to function and my mind was in a fog. Did not like that.

Now I've found my groove and think I'm getting balanced pain relief...as much as possible anyhow while restoring my cognitive functions. I'm not a fan of oil and tinctures or vaping so, I chose a capsule of 5 mg (20:1 ratio) during the day rotated around hydro, and double the strength at night to 10 mg in a chewable tablet. The chewable allows for faster entry to the blood stream. Side effects that I experience is a calming through my body and possibly tired. I make sure to not take on an empty stomach.

So, the opioid lifts me and hit my sharp pains that make me not be able to walk. The medical marijuana calms me and settles burning, aching and pain. Some days (and we all have them) pain is simply unstoppable no matter what. Together they seem to be best for me and with that, I'm still debilitated and use my body wisely but can be at better peace.

So much for keeping it brief! Eyes are shot yet again. Will end here. Happy day everyone.
Rachel

Going to add... a side effect from medical marijuana for me is eye burning. Some days worse than others. Cant figure it out. Anyone else?