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@lorirenee1 Never a dull moment in our bodies. The sensations you experience in your feet must be awful.
Outside of steady pain, some of my sensations flare, come and go on different levels and different body parts. Everyday can be unique. Recently I was low on R Alpha Lipoic Acid so I rationed until my next order arrived by reducing my daily intake. I believe sensations flared as a result. It was comforting to feel something actually making positive contributions to my body. What supplements do you take and do you think they help?
Yes, I surprised myself last fall by opening the door to medical marijuana. Desperate times call for desperate measures. It's been a love/hate relationship and one of much experimenting. As of late, due to mismanaged pain, my PCP has allotted 5 hydro per day instead of 4, my neuro upped Lyrica dose and I have needed to rotate THC pills throughout the day to control pain. I find that opiod relief and marijuana relief are different. I benefit differently from each.
I used to hope that with pain relief came the ability to physically accomplish things. I'm a go getter by nature and have always lived by the activity with accomplishment rule. Never could sit still... love to achieve. However, now I have no choice but to accept my new life and find comfort in feeling pain relief without physical accomplishment. Acceptance is and always will be my daily battle.
As soon as the world settles, I hope you get back on track for your dorsal root trial. Think positive.
Rachel
Replies to "@lorirenee1 Never a dull moment in our bodies. The sensations you experience in your feet must..."
Good morning @rwinney, cheerio. So, my flare went away...stayed in bed until 2:30. One of those days. Rachel would you please share your experience with different responses from medical cannabis and opioids. I have never used opioids so I only know one side of the coin. If you could mention changes in dosages that would be helpful.
When did your body begin to require a different dosage, ratio mix or increase in dropper amount? I am starting 1:3 CBD/THC today. Just call me a mixologist. I do want to get the percentages right. I am currently using 1:1 CBD/THC, 2 droppers. I didn’t expect that my body would cry out for a higher dose. Is that what you felt? Thank you.
May today find your mind at peace.
Chris
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@rwinney Hi Rachel, Living with steady pain is no joke. I remember reading that you have central pain sensitization. Did I call that quite right? I do know it has to do with your brain amping up pain signals for no reason. There is where the theories of telling yourself that there is no reason for pain, that you are ok, etc., come into play. However, I really believe that with nerve damage illness, those kinds of things just do not work that well. I have done endless tapping, talking to myself like a nutcase that I do not need the pain, and that my brain needs to calm, but those things seem to work for only short periods of time. So I am happy to have my Kratom and medical marijuana so that I don't contemplate ending it all. Like you, I experiment with marijuana a lot. I want to take just enough to take away pain, but not feel high. I have not found that sweet spot. I wind up high, not intensely high, but pain is distanced. I can cope. I can watch tv, read, act like a person. I smoked marijuana in college, and had fun with it. I can't see the fun anymore. Maybe it is because I am a senior lady with different values. Maybe having to use it for pain takes the joy out of it. Like you, the biggest challenge is learning to live like this. It is intensely hard for me. I do not know if I will ever accept this life. I was a very hard worker and high achiever. Hard to give it all up. Meanwhile, I keep plugging along, waiting for my Dorsal Root trial. You have an intelligent, clear thinking mind, and I know how you struggle. And you are young still. So hard. Maybe our metamorphosis takes a very long time. If I could just accept this, it would help tremendously!!! Stay safe, Rachel. You are darling! Lori