Like you, I feel that my body from my waist on down to my toes is not a part of me. Because I am paralyzed, I only feel burning pain. I scold my legs like they belong to some other being. When they go into spasms I tell them to “stop and behave”. It’s a strange feeling to feel that only my upper body belongs to me. Yes, shoes are an issue. My feet swell to twice their size in the afternoon, so if I need to go out, I have to put my shoes on in the morning after my shower. All my shoes are wide and most have a soft fabric for the uppers.