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@rwinney Hi Rachel, I do love to see new pictures. It's fun! We do need to have some cheer! I am fine, my feet never are. Like you, I don't want to claim them as part of me. Besides pain, they are loaded with bizarre sensations that leave me having trouble putting on a shoe of any kind. Go from feeling like toes are all overlapped, to being yanked out of their sockets. Ball of feet feel twisted...I look down, and there are two normal looking feet. The only thing besides sensory nerves delivering pain and fire, are toe twitches, which are real. Anyway, I am high almost every nite, cause nite brings pain. And of course, my Dorsal Root trial was canceled. Enough about me. I hope you are having a fairly decent day today. I was surprised you started medical marijuana. I am glad it is giving your some relief. My very best to you....Lori R.
Replies to "@rwinney Hi Rachel, I do love to see new pictures. It's fun! We do need to..."
@lorirenee1 Never a dull moment in our bodies. The sensations you experience in your feet must be awful.
Outside of steady pain, some of my sensations flare, come and go on different levels and different body parts. Everyday can be unique. Recently I was low on R Alpha Lipoic Acid so I rationed until my next order arrived by reducing my daily intake. I believe sensations flared as a result. It was comforting to feel something actually making positive contributions to my body. What supplements do you take and do you think they help?
Yes, I surprised myself last fall by opening the door to medical marijuana. Desperate times call for desperate measures. It's been a love/hate relationship and one of much experimenting. As of late, due to mismanaged pain, my PCP has allotted 5 hydro per day instead of 4, my neuro upped Lyrica dose and I have needed to rotate THC pills throughout the day to control pain. I find that opiod relief and marijuana relief are different. I benefit differently from each.
I used to hope that with pain relief came the ability to physically accomplish things. I'm a go getter by nature and have always lived by the activity with accomplishment rule. Never could sit still... love to achieve. However, now I have no choice but to accept my new life and find comfort in feeling pain relief without physical accomplishment. Acceptance is and always will be my daily battle.
As soon as the world settles, I hope you get back on track for your dorsal root trial. Think positive.
Rachel
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Like you, I feel that my body from my waist on down to my toes is not a part of me. Because I am paralyzed, I only feel burning pain. I scold my legs like they belong to some other being. When they go into spasms I tell them to “stop and behave”. It’s a strange feeling to feel that only my upper body belongs to me. Yes, shoes are an issue. My feet swell to twice their size in the afternoon, so if I need to go out, I have to put my shoes on in the morning after my shower. All my shoes are wide and most have a soft fabric for the uppers.