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I am also new. Due to having a bar in my back and stenosis, degenerative disc disease and neuropathy I decided I am to young at 66 to let this disease take over. I have been on this merry-go-round for over 6 years and justfound this link. I walk over 4 miles everyday with two walking sticks to keep me from falling. When I do fall I have to wiggle to a tree or post to get up. My legs won't let me on my own. I walk due to it keeping me from having back spasms. I have legs that feel like they weigh 50 lbs. each and have spasms in them continuously. On the bright side my God is my strength and stronghold-not my doctors. I use tons of essential oils from DoTerra and Copaiba has been a game changer. To helps with spasms I use Adaptiv. I ask my pain doctor about CBD oil and he said go for it if you think it will help. I am scheduled for another steroid injection in two weeks. I have another collapsed disc pressing on a sensory nerve; Everyday is a new challege. Somedays the discouragement with doctors is my biggest challenge and others it is my discouragement with myself for not being a stronger fighter. I have found neurologist to be of no help at all.
Replies to "I am also new. Due to having a bar in my back and stenosis, degenerative disc..."
Hi @betty1954, thank you for the private message. You are definitely too young at 66 to let the disease take over ☺. I'm 76 and not giving up either. I think you just have to take it a day at a time on those really bad days. Have you thought about Myofascial Release Therapy? Here is a link to the discussion - https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/. I am still planning on locating a therapist that is proficient in MFR and nearby sometime next year to see if that helps my back problems.
You sound like a boxer to me! Keep up your fight and thank you for the inspiration.
Have you tried a Lo Bak Trax, I have found some pretty good results with using this. I have used it for 30 seconds, 6 repetitions a day and it has helped me a lot. I have spinal stenosis and degenative disc disease, but I have noticed a relief in the neurapathy in my feet also. Check with your doctor if he thinks that it will work without hurting you. It is like having spinal decompression. Always ask your Dr. if it is okay, my Dr. said it was fine for me to try, just start slow. You can buy one on Amazon and some drug stores carry (maybe Walmart too.) they are very inexpensive, under $20 and you can watch videos on Youtube.com, See if it helps you, good luck PS: i also use a cold laser device and hemp cream for relief of the burning.
I’m so sorry you are in so much pain and doctors can be discouraging. God is my strength and stronghold as well, I wouldn’t still be walking if it was for him.
Would you tell me more a the essential oils you use and how you use them? Also you mentioned Adaptiv? I have a lot of twitching muscles in my legs and buttocks.
Sometimes crawling sensation. Everyday is a struggle, I do my physical therapy at home now but I’m losing muscle mass and it kinda scary because I’m a very small person. I pray God will heal us all or there will be some type of medication that can help us but not opioids. May God bless you!
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@betty1954
I understand your lack of trust in neurologists. I've seen 4 of them, 3 of which retired. The remaining one I didn't feel a connect with him several years ago, but after seeing a couple of others very briefly, I went back to him. By asking questions and exerting a little pressure, he gradually warmed up a bit. He has done the tests at his disposal, and sent me on to OHSU, the university hospital in Oregon, where I live. After doing a number of tests, all they did was to confirm what my local neurologist had diagnosed. He is good at explaining things to me and telling me my options. My medical team has worked well together, each one helping me from their various perspectives. The ones I see regularly are my PCP, the neurologist, the pain specialist, the opthalmologist, the surgeon who is very knowledgeable about stimulators, the psychiatrist, and most of the time a therapist. As I said, I get a well rounded perspective on the various issues I have. I learn from all of them.
Jim