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Neuropathy & Exercise

Neuropathy | Last Active: Feb 10, 2022 | Replies (318)

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@southwind

Hi John...thx a bunch for the video link!! Really appreciate it.

Since I am new to the neuropathy “camp” (it came on for the first time in June, still seeking a diagnosis), I have a very limited experience with this except that I cannot walk except from the sofa to the sink;)

Meanwhile, my doc has me getting physical therapy. In the middle of a 6wk stint. So far, they are doing massage on feet/legs, are trying to separate my tight foot fascia from the foot muscles which has helped to free-up foot/ankle movement. Also designated home exercises: foot/ankle stretches, rolling my foot in three places on a bottle or ball, hubby does the fascia stretch on me 3x/day, and knee exercises: all for flexibility and strengthening.

What I find really baffling is that I’m told to exercise, but walking cannot be a part of it. Left with exercising in place much like what you describe as your regimen. Guess I’m still getting used to the idea that this is probably not a temporary condition.

Went to Williamsburg a couple of weekends ago. Had to use a seated scooter for the first time after a lifetime of hiking/walking/standing. It was easier than expected, and really spared me from pain and created a new mindset — gave me a whole new perspective on mobility.

So this ‘ole gal (68) is searching for ways get into/stay in shape despite the neuropathy. Hope it helps others too!

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Replies to "Hi John...thx a bunch for the video link!! Really appreciate it. Since I am new to..."

You mentioned massage therapy to help with the foot fascia. There is another discussion you might find helpful on Myofascial Release Therapy.

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

I think you might have read an earlier post I made in April 2016 before I had my diagnosis of idiopathic small fiber PN. I made a followup post on what I found that helps me here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Don't give up on learning everything you can about your condition and searching for something that helps you!

I am also new. Due to having a bar in my back and stenosis, degenerative disc disease and neuropathy I decided I am to young at 66 to let this disease take over. I have been on this merry-go-round for over 6 years and justfound this link. I walk over 4 miles everyday with two walking sticks to keep me from falling. When I do fall I have to wiggle to a tree or post to get up. My legs won't let me on my own. I walk due to it keeping me from having back spasms. I have legs that feel like they weigh 50 lbs. each and have spasms in them continuously. On the bright side my God is my strength and stronghold-not my doctors. I use tons of essential oils from DoTerra and Copaiba has been a game changer. To helps with spasms I use Adaptiv. I ask my pain doctor about CBD oil and he said go for it if you think it will help. I am scheduled for another steroid injection in two weeks. I have another collapsed disc pressing on a sensory nerve; Everyday is a new challege. Somedays the discouragement with doctors is my biggest challenge and others it is my discouragement with myself for not being a stronger fighter. I have found neurologist to be of no help at all.

Love your positivity!

@southwind, @johnbishop, I have a question about the statement that walking cannot be a part of the exercise program for folks with neuropathy. I have just worked my butt off to finally be able to walk one mile. It has taken two years of effort and lots of weekly myofascial treatment from my MFR therapist to get to this point. Now that I have that capability I can do walking meditations and catch two birds with one stone. I am careful not to get too aggressive. It just really feels good to walk again. Am I doing something wrong? Will there be the proverbial price to pay? Hope you both have a lovely night of restful sleep. Chris

I am a retired nurse with peripheral neuropathy from spinal stenosis and notice a difference in numbness after stretch and hold exercises, however it doesn't last The concept is to promote neurogenesis with increasing blood circulation to the capillary beds. This concept is similar to angiogenesis of the heart through exercise to promote collateral circulation in the heart. Loma Linda University has a Physical Therapy program that eliminates or reduces the problem. The have finished a 10,000 cohort study of their program with impressive results They also use ultrasound. I wrote to them and received a brochure but no exercise instructions. Shame they are not willing to share their program with the millions of American's suffering from peripheral neuropathy outside of LA. Perhaps passing this on to your physical therapist may help define the program. I do not know if works for both large and small fibers. Good luck!

Hi Southwind. I have been down your track and now feel that can overcome my Peripheral-neuropathy . If you can afford meet with a neurologist. He or she will run you through a very intense series o tests: Blood an fMRI brain scans. You wil then know what your real problem is. Then action can be considered. Many neurologists will suggestthat nothing can be done However as you have a brainproblem new research,accepted world wide shows that is incorrect. There is an incredible book ' The Brain that cha ges itself' àuthor Norman Doidge ison the market. Read it, and it will explain many possi ilities that many doctors are unaware of or hop on to your computer , and get through to thde Mayo Clinic who are totally up to date and fully support Doidge's findings. Good luçk and get excited about a better future. I am aged 89, and intend to overcome this problem. Let me how you are progressing. Best wishes.

Quick comment: You are not old! I’m 88 and have had (mild) peripheral neuropathy for many years. Luckily it has not affected mobility at all. Just burning and numbness, not really bothersome during the day.
Good luck, young lady!