← Return to Any experience w/ med: Oxcarbazepine (Oxtellar XR, Trileptal)?

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@jakedduck1

@rtwoody300
Hi there,
Welcome to Connect. I assume you have Focal Epilepsy? Keppra is notorious for causing mood issues. Did your Zeeg show any activity? Did you have the usual side effects of fatigue and memory problems or any other side effects? Do you have any side effects currently? Oxcarbazepine may cause low sodium. Did your doctor mention that? Did he order a sodium level or a metabolic panel or suggest how often it should be done. You need to be mindful of this because the effects of low sodium can be extremely serious. Oxcarbazepine is metabolized in the liver so you should have a liver panel done at least once a year. Numerous anticonvulsants lower vitamin D levels, Oxcarbazepine among them, I’d suggest you have your vitamin D level checked and ask your doctor about taking a supplement.I’ve taken seizure meds for 52 years and now take 2,000Iu of Vit D, down from 6 000. It's great to hear someone's seizures are controlled, especially with monotherapy.
take care,
Jake

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Replies to "@rtwoody300 Hi there, Welcome to Connect. I assume you have Focal Epilepsy? Keppra is notorious for..."

Only had 3 seizures. First I had know idea.....woke up in the middle of the night and every muscle in my body was cramped. Second seizure wife actually thought I was having a stroke.....ambulance ride to hospital and 8 hours in E.R. ..... Dr. decided it may have just been exhaustion. Third seizure was full tonic clonic....threw myself out of bed.....another ambulance ride and better E.R. Dr. who realized right away what happened. That's when I was out on Keppra.

I have been on keppra for four years and I think it is time to change meds.Any suggestions,a couple people said to try dilantin or depakote has anyone tried either.Thank you for any information on these drugs or any other drug anyone would recommend