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Daughter not on medication for seizure no diagnosis
Epilepsy & Seizures | Last Active: Dec 28, 2019 | Replies (11)Comment receiving replies
@cc001
Hello,
I certainly understand being hesitant on medicating as these drugs do come with side effects but I would try them. 70% of people with Epilepsy are controlled on medication. There are 24 seizure drugs and getting the right one or combination is often challenging. Have they ruled out Catamenial epilepsy, also known as menstrual seizures?
Does your daughter ever have a headache, feel sore, tired or possibly sick? Does she feel confused, or have memory problems or ever bite her tongue or cheeks?
I'm I understanding that she wakes up and is jerking while awake and alert? Does she ever lose consciousness? Have you ever heard what's known as the Ictal Cry which is when air pushes up past the larynx creating a scream or cry type sound during a Tonic-Clonic seizure? Have you ever seen her have one? How long do they last?
Take care,
Jake
Replies to "@cc001 Hello, I certainly understand being hesitant on medicating as these drugs do come with side..."
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None of these things at all. During seizure shaking is less than a minute but the whole episode is 20mins. Starts with the jerks then the shaking then disorientation and then wakes up alert like nothing happens and I ask her questions to check memory and no issues. She is an A student thriving in school and her competitive dance. Life for her is completely normal, she's accepted and made this a part of her life. She is doing so well and o would hate to mess up her system by testing medication and it's not necessary ...her third cousin had seizure from grade 10 to first yr of college and just went away. I am hoping this is the case for my daughter ..I video tape all episode for neurologist to analyze. She emulates seizures but with everything else they think it's psychogenic not epileptic. As soon as we worked through emotional issues, incidents became less frequent. She is doing incredible since we've made significant lifestyle changes