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Daughter not on medication for seizure no diagnosis
Epilepsy & Seizures | Last Active: Dec 28, 2019 | Replies (11)Comment receiving replies
She has it like two or three times a month and the video EEG appointment is not available til may or June 2020 which is ridiculous . Would you then medicate even without diagnosis from Video EEG? She is 15 yes old ..she would at some nights wake up with jerking movements and would go away by doing breathing exercises and not seize.its been a year..doctor didn't want to put on medication but since it is still occurring even less frequent, they are now giving option of testing medication
If it goes away it means it's epileptic as they are not sure ..
Should we try medication and test out? I just don't want to give it without proper diagnosis
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@cc001
Hello,
I certainly understand being hesitant on medicating as these drugs do come with side effects but I would try them. 70% of people with Epilepsy are controlled on medication. There are 24 seizure drugs and getting the right one or combination is often challenging. Have they ruled out Catamenial epilepsy, also known as menstrual seizures?
Does your daughter ever have a headache, feel sore, tired or possibly sick? Does she feel confused, or have memory problems or ever bite her tongue or cheeks?
I'm I understanding that she wakes up and is jerking while awake and alert? Does she ever lose consciousness? Have you ever heard what's known as the Ictal Cry which is when air pushes up past the larynx creating a scream or cry type sound during a Tonic-Clonic seizure? Have you ever seen her have one? How long do they last?
Take care,
Jake