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@kayjaylauren

Hi @kanaazpereira, thanks for this info! I wish there was someone out there with the same tumor to connect with! But I know it’s so rare, I’ve researched similar skull base tumors before specifically acoustic neuromas and Dr Bendok and Dr Weisskopf will actually be performing my surgery next month! I’m not sure if I will need radiation but I’ve already met the radiation team and Dr just in case! Once again thanks for this information and reaching out!

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Replies to "Hi @kanaazpereira, thanks for this info! I wish there was someone out there with the same..."

Hi, @kayjaylauren - you mentioned your craniotomy resection w/ stomach graft is sometime in December. When will you have the surgery? What will your recovery be like, according to your surgeons?

Hi, @kayjaylauren - wanted to touch base with you and see how you are doing?