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Autoimmune mystery

Autoimmune Diseases | Last Active: Sep 16, 2023 | Replies (90)

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@astaingegerdm

@horselover7216 - Hi! I have followed your posts and conversations. I understand that you are very sick with possible autoimmune encephalitis- correct? I’m so impressed with your detailed posts- it must be very hard - but you are angry and that helps you trying to find out how to get better. Encephalitis of any kind will cause panic in your central nervous system. I also understand that all testing you have had still does not pinpoint the cause. I had hallucinations like yours once/ after a surgery where I from unknown causes got fluid in my lungs and less oxygen to the brain.
The impression I get is that you don’t understand why you get all these problems- such as inability to urinate and fecal incontinence in addition to everything else. What I would do- if I were you- is asking the doctors- especially the neurologist- why each symptom occurs- write questions down and write down answers- or have someone write for you- so you can go over these answers when you get confused and angry. I so hope for you that you get back to normal soon!!

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Replies to "@horselover7216 - Hi! I have followed your posts and conversations. I understand that you are very..."

Hi
I'm sorry, I want too reply but my brain is just empty.. Cloudy.. Can't think of anything anymore.. Can't even type..
Feels like my body is just shutting down and can barely feel anything anymore… Not even emotions.
I went from out off control anger, too nothing…
I can just shut my eyes and just kind off drift off…

How do you go from, severe pain too just a dull ache? It's like it's there, but not there; if you know what I mean..

How do go from pure anger, too barely anything..