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Autoimmune Diseases | Last Active: Sep 16, 2023 | Replies (90)
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@horselover7216 Good morning. All of this must be so difficult for you. And your parents. You mentioned having an MRI—do you know if was ‘with’ contrast (dye)? The physicians here have to use contrast/dye with my brain just to make sure they can see everything. You also mentioned that you’ve not eaten since September 2017. And you’ve been on an NG tube this whole time? And you’re not sleeping? Wow, sleep deprivation, alone, can cause problems. I certainly hope someone can find answers for you.
I agree with @johnbishop suggestion of the TED talk (see link above). I read the book and it’s fascinating. Please stay in touch with us
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Hi.
No it was a normal mri. Think they only use contrast with ct (cat scans)
My mood is just getting worse and I'm getting weaker and weaker physically and mentally.
I had a breakdown that has now pushed me back too being unresponsive again.
I keep seeing and hearing stuff still and it's hard!
My NG tube was put back in in the 3rd day without fluids, meds or feed.
I'm still not having my feed though, as I'm refusing it.
I've had my NG tube since, like the 12th of January 2018.
Can low blood sugars cause encephalitis.
I've also had the neuro virus for the first time on November 2018.
Bloods have been sent but, what if they come out negative...
Don't know how much longer I can cope, too keep fighting for more scans and tests.
My mind is blank and foggy!
I'm now on melatonin instead off zopiclone too see if I can sleep better 😑