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A diagnosis at last.... It has been determined that my wife has Micro Polyangiitis (MPA)/ANCA Vasculitis. It has done extensive damage to her kidneys and dialysis and an eventual transplant are indicated. Some damage to nerves, lungs, and heart area (not the heart itself) occurred. Hemoglobin has also been negatively affected. She is hospitalized and undergoing treatment. Chemotherapy will likely start today or tomorrow.
Replies to "A diagnosis at last.... It has been determined that my wife has Micro Polyangiitis (MPA)/ANCA Vasculitis...."
Dear 3les54 Thank you for being one of the very best husband's there can be. So caring, so wonderful, your wife is blessed to have you. You are appreciated by many. Thank you for being so wonderful a person.
I’m the sister referred to by Becky! I also have MPA with rental involvement diagnosed 4 years ago. Do you know what chemo drugs she will have? I took several that stopped the advancement of the kidney disease which is probably their main focus right now. After months of high powered drugs, things settled down to a new normal. Will be happy to discuss off line with you if that will help, Molly
I’m glad she got a diagnosis. 🙏🏼 I was diagnosed with PMR last Aug and it is a brutal beast of a disease. I understand the pain part of your wife and the life change it causes. I’m a mechanic by trade, and very active. PMR has limited me... will continue to pray for your wife.
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@3les54 Good morning. I’m so glad your wife finally got a diagnosis and is getting care! Waiting, worrying, and not getting better are just so awful! My sister, too, has MPA-ANCA and is doing well with treatment. I’m going to ask her to return to this discussion to see what information and support she can give your wife. Is your wife being treated locally or at a medical center?