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3les54 (@3les54)

Autoimmune mystery

Autoimmune Diseases | Last Active: Mar 19, 2020 | Replies (73)

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@american

Can I ask you what kind of specialist your wife saw to find she has CMS? Who would you see at USC.
I have the same symptoms, not that severe. Saw hematologist and Rhematologist, none know what's wrong, except blood tests every six months. I don't know if they do care or not. It's been almost two years and think I should find new good doctors who care. I do have HMO but in Los Angeles the medical group or network are the one who control every thing. I'm now ready to go to outside the insurance and pay my own. I have to control my own health not some medical groups who only care about $$$

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Replies to "Can I ask you what kind of specialist your wife saw to find she has CMS?..."

@3les54 I know what you mean I'm fed up with my medical group and am switching to another group in Jan. Hope this one is better as now that refused so many meds for fibromyalgia and the need for certain medications. Dr is fed up with it also no wonder good Dr,s leave this practice .

Same here american, I have hmo medical group, went to hematology, rehmotolgy and they don't know what's wrong with me and why my white blood is low.
I went to UCLA rehm in burbank and was told it would be $100, spent 5mn with the doctor and now I get a bill for $576.0. I think they're forcing us to buy supplement insurance. I'm in Los Angeles and the hmo would not refer me to USC or UCLA or Cedar Sinai.
I started to have swelling and redness on the side of my leg above the foot and it's getting larger. The bottom of my foot and going higher large red batches. Hematologist referred me to Dr. Church at Children Hospital, he see adults too for Allergy and Immunology.
He wouldn't give appt until he reviews my records. I've been in this mess for three years now and don't know what to do. Please tell me how to maneuver the hmo system