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Re: My Scan Results for followup of Renal Cell Carcinoma
Kidney Cancer | Last Active: Feb 15, 2021 | Replies (37)Comment receiving replies
First of all, you are NOT alone.
I agree with what JK says.
I also lost a kidney. Only thing is, nobody knew for years and years until my remaining kidney started to fail and scans revealed a totally atrophied left kidney with around 22% function in the right one.
I was furious! How could I not have known? How could this not have shown up on lab tests? Why did I have to develop diabetes which likely did most of the damage, along with kidney stones and bouts of kidney infections? How dare the universe ruin one of my kidneys? And how dare other people get in my way, speak to me at all, go about their business when I'm scared poop-less?
I was cross, cranky, irritable, asked a zillion questions.
But no nurse or doctor ever told me I was "more anxious." That nurse should have her license jerked.
Of course I was anxious. Of course you are anxious. Of course I was grumpy. Of course you feel grumpy.
Just know that the anger and fear probably will subside the more you know because knowledge is power.
I, too, resent the "invasions" of my privacy with tests and scans but I also now welcome them because at least I will know what's going on and can take appropriate measures.
The difference between us is that I didn't see a therapist formally as I am a member of a 12-step program which gives me tools - and expert people - to deal with my issues of resentment and fear and one of them happens to actually be a therapist.
I would venture to say that most of us here feel or at least have felt like you do and we are here for you. You can vent, rant, complain and we all will understand and support you. Together this group has some answers. . .
You are not alone!
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I completely understand what the feelings are here
However I realize I have done exactly the reverse. I just shut down. My cancer experience begin with my spouse and both sons. You listen to what all the doctors are saying and try to figure out just what has happened in your family. How could this be it is not the correct order of things. I think all the time, however I just don’t talk to anyone about my thoughts. I’m known as a very strong person all my life. I’m the dear Abby for everyone. I just can’t discuss anything that pertains to me. Seems that those friends that have used me as an outlet for all their problems-relationship issues, unhappy with shopping you get the picture, just petty things with no real substance. Yet I listen. Have had to block my phone from some friends that yell and scream about their pettiness and have no idea what that is doing to me or for that matter they don’t care. Not many true friends. Working through the maze of all the different specialists for spouse and both sons as their caregiver (they are deceased now) and then be given the same sentence is overwhelming. You can not deny to yourself what you are facing.
I had the very unfortunate THOUGHTLESS breast care SPECIALISTS have me in the office to deliver what the plan was for my care
She started by shuffling me and a friend into a little room with a dirty cringe worthy sofa and a white drawing board attached to the wall. Started drawing s boob and running through her power point type speech. My friend ask a question (friend is breast cancer survivor) and DR became angry that she dared interrupt her. she threw her felt pen to the floor and flopped down in her chair at which time she announced and I quote “well you are just dying” you are stage 4. However we should do mastectomies anyway” unquote
This is the most I have vented.
I left the doctors office with just the comment that I thanked her for the information however I would seek other care.
Wow what s journey.