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My bronchiectasis specialist is leaving!
MAC & Bronchiectasis | Last Active: Nov 29, 2019 | Replies (25)Comment receiving replies
Hi Sam
I'm the Chicagoan who is losing my bronchiectasis/ntm specialist to UT at Tyler sometime in the next few months. Terri mentioned me. There are very few pulmonologists who specialize in our rare diseases and most patients appear to be seen by a general pulmonologist AND an infectious disease doc. Pulmonary centers that have experience with the most patients like us are at National Jewish in Denver, UT in Tyler and Mayo. Other places have some patients but I believe that these are the ones seeing the most patients, having labs devoted to our organisms and doing the most research. Lucky you to be driving distance from Tyler. If I were you I would set up an appointment there asap.
Happy turkey day!
Rita
Replies to "Hi Sam I'm the Chicagoan who is losing my bronchiectasis/ntm specialist to UT at Tyler sometime..."
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Thank you so much for your response. This referral business is crazy. They get you in their system and it’s like trying to stop a freight train! I’m seeing an infectious disease doc Monday just because it’s easier to go than try to change the referral. I don’t believe you need one at Tyler, and as soon as The results of my New Year’s Eve scan Are in, I plan to set something up. People act as if this is no big deal, but To me, it’s a very big deal, and life changing. I’m sorry you are losing your doc. That relationship is worth everything. I do know that the more information we share, the better equipped we are to deal with our own dis-ease. I’m so appreciative to you and all those who are willing to share. Lots to be thankful for❤️.
Thank you again, and Happy Thanksgiving to you as well!
Sandy