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My bronchiectasis specialist is leaving!

MAC & Bronchiectasis | Last Active: Nov 29, 2019 | Replies (25)

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@windwalker

@sam33 Hi there. I am glad that you have joined our discussions. Are you able to navigate around our group site alright? Have you seen our 'Discussion Board' with a list of topics? There is a lot of helpful info there. Please let me know if you need help with any of that. Also, if you don't mind, keep me posted on how your next scan goes. Sometimes mac goes away on it's own or will just lay way low. I am hoping you get a good report. What brought your dx to light? Were you having symptoms?

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Replies to "@sam33 Hi there. I am glad that you have joined our discussions. Are you able to..."

Hi Terry. Thank you. I would like to think this could go away in its own, but It seems to involve all lung lobes but upper left, and there is cavitation in middle right. I think the follow up scan is just to make sure it’s “just” mac. A year and a half ago, I had a medical exam for work (USDA veterinary services) about 18 mo ago. It showed patchy opacities in right middle lobe. I was unable to get anyone to take it seriously (GP) since they never saw the one done by the gov, and their recheck rads only showed scar tissue. So...shortness of breath progressed, some pain on the right, fatigue, crackles when in reclining position, couldn’t breath good when lying in right side, and finally a cough when reclining that was so bad I asked for a referral. Then the pulmonologist told me I was referred to told me that was all in my mind, and that it was just asthma. But we were going to do a scan anyway. She was surprised I think. Did the scope and never saw me again. Health department snagged me for 10 day quarantine, then saw pulmonary NP for follow up. They have referred me to Infectious disease because they don’t treat this. I’m going to go, but only to hear what he has to say, and likely either get referred to a pulmonary who treats this or refer myself to Tyler, Tulane, or Mayo. I could drive to Tyler or Tulane. Do you know if anyone has had experience with Tulane? I feel like I’m in “doctor jail”. Oddly, I’ve worked with back yard chickens regularly over the last four years. Coincidence? Lots to get off my chest:-) Thanks for asking:-)!