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rits (@rits)

My bronchiectasis specialist is leaving!

MAC & Bronchiectasis | Last Active: Nov 29, 2019 | Replies (25)

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@rits, I can imagine that you feel like the bottom just fell out. It is hard to lose a trusted specialist, especially when there are so few MAC expert around. @windwalker can relate. She also had to change specialists, I believe due to retirement. I'm also tagging a few other member, who I think might travel to get MAC care, like @macjane @auntnanny @irene5 @jkiemen @tdrell @ling123.

@rits, will you need to travel to Texas to become a patient at Tyler? Do they have a patient portal?

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Replies to "@rits, I can imagine that you feel like the bottom just fell out. It is hard..."

Thanks Colleen! I'm not familiar at all with Tyler but I'm sure they have mychart or another patient contact venue. I will know more when I see Dr Mcshane in January. She said she is going to figure out how it will work long distance. Luckily she has a close working relationship with my general pulmonologist at U of Chicago.

@rits….I live in Wisconsin and went to NJH in Denver 3 years ago for second opinion. I still have pulmonologist locally for the sleep apnea confirmed at NJH and routine bronchitis that occurs. I went thru the 10 day battery of tests at NJH and was told I did not require NTM medications ( which local ID Dr was ready to start]. I went back once a year to NJH for follow up….usually takes half a day….last year was told next appt in 18 months. I would check out weather in Texas…..all 3 times in January I had blizzards and ice on roads in Denver. You would have advantage that Dr McShane knows you and your clinical situation. Another thought I have….navigating the physical building in Texas….I was from Chicago and visited near the Un of Chicago Hospitals….if you navigated that…..you can navigate ANYWhere….Terri from @tdrell