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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@katec

@albiet Thanks for your positive thoughts! We need all we can get! Dr Oaklander is great and easy to work with, so we will stick with her as as our “expert” and still use a local neuro as well. Dr O likes having someone local to us so they can see my son when he tries new meds and make sure there are no adverse reactions. She’s been in touch with our pediatrician and our diagnostician during this whole ordeal. She’s pretty honest saying she doesn’t know it all and is always open to others opinions and thoughts! We are lucky to have her in our court.

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Replies to "@albiet Thanks for your positive thoughts! We need all we can get! Dr Oaklander is great..."

@katec she sounds wonderful. I tried to get an appointment with her but was told she no longer sees new patients. I am so happy you were able to see her. I hope she opens up to new people in the future.