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DiscussionUnknown Cause or Idiopathic SFN
Neuropathy | Last Active: Jan 7, 2020 | Replies (120)Comment receiving replies
Replies to "@katec as a parent, I understand what you are going through. I pray for your son..."
@albiet Thanks for your positive thoughts! We need all we can get! Dr Oaklander is great and easy to work with, so we will stick with her as as our “expert” and still use a local neuro as well. Dr O likes having someone local to us so they can see my son when he tries new meds and make sure there are no adverse reactions. She’s been in touch with our pediatrician and our diagnostician during this whole ordeal. She’s pretty honest saying she doesn’t know it all and is always open to others opinions and thoughts! We are lucky to have her in our court.