← Return to Unknown Cause or Idiopathic SFN

Discussion

Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

Comment receiving replies
@albiet

@katec as a parent, I understand what you are going through. I pray for your son and also for you to continue to have the strength needed to find the cure for his SFN. I believe I read in the thread that you are not from Boston. Will you continue to see dr Oaklander or will she work in conjunction with a local neuro.

Jump to this post


Replies to "@katec as a parent, I understand what you are going through. I pray for your son..."

@albiet Thanks for your positive thoughts! We need all we can get! Dr Oaklander is great and easy to work with, so we will stick with her as as our “expert” and still use a local neuro as well. Dr O likes having someone local to us so they can see my son when he tries new meds and make sure there are no adverse reactions. She’s been in touch with our pediatrician and our diagnostician during this whole ordeal. She’s pretty honest saying she doesn’t know it all and is always open to others opinions and thoughts! We are lucky to have her in our court.