← Return to Unknown Cause or Idiopathic SFN

Discussion

Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

Comment receiving replies
@rwinney

Hi there. I'm thinking of your son and wondering how your fight with insurance is going regarding IVIG? How is your boy doing? Any changes for the better?
Rachel

Jump to this post


Replies to "Hi there. I'm thinking of your son and wondering how your fight with insurance is going..."

You’re so sweet for thinking of him. Sadly, nothing new to report. The doctors are still trying to determine if IVIG is the best treatment for him. He sees a wonderful neurologist in Boston who is working on the long term plan for him, but we are seeing a new neurologist that will be local to us, here in Texas, who can hopefully help with the daily pain. He isn’t currently taking anything right now for the pain and he’s pretty miserable. There’s a lot of walking involved in a regular day of high school, so he’s running on empty by the time he gets home but he’s still smiling hoping for the best. He’s been taking CBD lately, but he said it doesn’t seem to make any difference. Are the tinctures (we’ve never tried those) better/more effective than the capsules? Maybe that is something we should look into while we wait to see the new dr next week?

Thanks again for asking about him! How has your pain been lately?