My son was put on 50 mg of Prednisone for 30 days to suppress his immune system and see if that helped with his pain. It did not help him at all, but supposedly some people are on maintenance steroids because it does help them. I think it supposed to be more helpful to those whose SFN is caused by autoimmune issues and not genetic.

We are currently trying to determine if IVIG would be a reasonable treatment for my son. Since we can’t point our finger at a specific autoimmune issue causing his SFN and he didn’t respond to the Prednisone, the doctors are hesitant to try it, but haven’t ruled it out yet. Insurance probably won’t cover it since we can’t pin it on a specific autoimmune disease, but that’s ok, he’s 15 years old and something needs to be done soon! I’ve gotten my way with insurance in the past, so I’m prepared to work my magic again;) Insurance hasn’t met this Mama Bear yet!

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