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Unknown Cause or Idiopathic SFN
Neuropathy | Last Active: Jan 7, 2020 | Replies (120)Comment receiving replies
Hi @azza1
Thank you for your response. Im so glad to hear botox injections bring some relief to you. I receive botox in the same areas and I count down the days in my final month until next visit. Never thought I'd be so happy to get 40 little bee stings all over my head neck and shoulders. We gotta do, what we gotta do! Yes, no cure is right...sad but true for now. Be well in managing your pain today. Its really hard to live with such uncertainty but talks like this help to know we are not alone.
All the best,
Rachel
Replies to "Hi @azza1 Thank you for your response. Im so glad to hear botox injections bring some..."
Hi Rachel
How are you ?
As you know , i have a hemiplegic migrain and idiopatic small fiber polyneuropathy .
I want to ask you about the migrain attack?
Do you lose the speech when you get the attack ? Because that is happened for me and thr neuro return the Topamax medication for me after he stopped it when he prescribed the botox injection for me from 2 years ago . But now the neuro wants me on the botox and the medication too . The loss of speech it takes days now and i feel weak on my right side of my body too .
Would you please , tell me is this your situation too .
Thank you
Manal
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I always thought Botox was supposed to last a while, you get 40 injections every month? I also get pain/headaches in the back of my head and neck but NSAIDS usually do the trick. (for now)