← Return to Unknown Cause or Idiopathic SFN

Discussion

Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)
Comment receiving replies
@azza1

Hi Rachel
I have a hemiplegic migrain from more tham 10 years and it causea sever pain and stiffness in my neck, shoulder and back head and i was taking topamax tab 100mg . Due to a side effect between it and Cannabis . The Neuro change the topamax to Botox injection on my head , neck and shoulder . The Botox helps me in the stIffness of them . That is make me thought this symptoms is related to the migrain not to the SFN . The other symptoms are my right hand and both legs from my toes up to my both knee cramping , burnnig and baker cyst in my right knee cause joint locking and pain . Now my left hand starts numbness and tingling.
I understand what we are taking are a pain killer or analgesic only but there is no cure for this disease . I am really sorry to say that .
Thank you

Jump to this post

Replies to "Hi Rachel I have a hemiplegic migrain from more tham 10 years and it causea sever..."
Rachel, Volunteer Mentor | @rwinney | Nov 18, 2019

Hi @azza1
Thank you for your response. Im so glad to hear botox injections bring some relief to you. I receive botox in the same areas and I count down the days in my final month until next visit. Never thought I'd be so happy to get 40 little bee stings all over my head neck and shoulders. We gotta do, what we gotta do! Yes, no cure is right...sad but true for now. Be well in managing your pain today. Its really hard to live with such uncertainty but talks like this help to know we are not alone.
All the best,
Rachel

VIEW AND REPLY