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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@klro0001

Hi, Rachel!

Thanks so much for asking. There’s nothing new or different at this point. It’s good in the sense that I’m not in pain or getting worse, but it’s not so good because the not knowing is doing a number on my anxiety. But, I’m not as anxious as I was initially. I realize that I have so much love and support from so many people in my life, and that’s a blessing no matter the outcome. One day when I was lying around feeling sorry for myself, my husband looked at me and said, “Worrying doesn’t take away tomorrow’s troubles, it takes away today’s peace.” He probably got that from a fortune cookie or some other source but it makes sense. So I’ve stopped spending every free moment researching neuropathy and planning for the onset of pain (I’ve limited it to 2 hours a day 😃). I’ve also started meditating and I resumed working out at the gym. I’ve decided that I’m going to keep on living my life to the fullest for as long as I can. My appointment with my new neurologist is on December 4th. I’m asking for bloodwork and a skin punch biopsy. I’ll be sure to let you guys know how it goes.

Kia

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Replies to "Hi, Rachel! Thanks so much for asking. There’s nothing new or different at this point. It’s..."

You crack me up. Hahaha...I would have thought the same thing if my husband said that to me but, would have thought it was a Bruce Lee quote as my hubby is a big fan. Well, those words were spot on regardless. Such truth. Keep up the good work and I will continue to send positive thoughts your way for Dec 4th and beyond.
Rachel

I've tried neurologists and they didn't help me. I am going to a naturopathic doctor. Drugs do you relieve pain, but they don't to the deep cause of your issues. Investigate a naturopathic doctor. It could a mutated gene, high B 12 which is actually low B12, complicated to explain. Take a food intolerance test. Take a fecal test for leaky gut. OAT test, organic acid test which tests for candida/fungus and many other issues, 75 differerent tests. You may have a mutated gene(s). Lower your stress level, go to sleep no later than 10 p.m.. I have candida and being treated for it. Eating the wrong foods can agitate PN, like it does me. I alsohave tinnitus. I am taking Gabapentin for nerve pain. I also put SomaCare on my toes and under my toes because they get very tight sometimes. I and my doctor highly suspect that I have mutated genes. I have done alot of reading on alot of health topics pertaining to these issues. The OAT test has 2000 test to prove that it works.