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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@rwinney

Thank you Kia. What has been new or different in your journey since we last spoke?

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Replies to "Thank you Kia. What has been new or different in your journey since we last spoke?"

Hi, Rachel!

Thanks so much for asking. There’s nothing new or different at this point. It’s good in the sense that I’m not in pain or getting worse, but it’s not so good because the not knowing is doing a number on my anxiety. But, I’m not as anxious as I was initially. I realize that I have so much love and support from so many people in my life, and that’s a blessing no matter the outcome. One day when I was lying around feeling sorry for myself, my husband looked at me and said, “Worrying doesn’t take away tomorrow’s troubles, it takes away today’s peace.” He probably got that from a fortune cookie or some other source but it makes sense. So I’ve stopped spending every free moment researching neuropathy and planning for the onset of pain (I’ve limited it to 2 hours a day 😃). I’ve also started meditating and I resumed working out at the gym. I’ve decided that I’m going to keep on living my life to the fullest for as long as I can. My appointment with my new neurologist is on December 4th. I’m asking for bloodwork and a skin punch biopsy. I’ll be sure to let you guys know how it goes.

Kia