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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@azza1

Hi everyone ,
i am on Lyrica brand name.
Decarb High CBD is
https://www.cbdschool.com/what-is-decarboxylated-cbd/

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Replies to "Hi everyone , i am on Lyrica brand name. Decarb High CBD is https://www.cbdschool.com/what-is-decarboxylated-cbd/"

@azza1 thanks for the quick response. Can I ask which brand of de carb high cbd you use?
Is it true there are difference between the brand lyrica and the generic.

Hi. I took time to read back through your history of posts and I have a better understanding now of your situation. You and I are very similar. I have Small Fiber Poly Neuropathy and was told from a B12 deficiency (219). My b12 levels are normal now, however no help to my nerves so I might as well be idiopathic....the damage has been done. Neurologist says maybe if lucky my nerves may regenerate 2-3 years. I think that is big farce. My symptoms continue to progress and parallel yours except my damage is neck and up back of head, across backs of shoulders, down arms and into hands (right side being worse), both full length of legs and feet (right foot and left calf being worse). Aching in legs, cramping in legs and arms, burning skin, vibrations, shocking pains, limited walking and many other things. It truly torments me. Thank you for sharing your story and success with CBD. I'm on Lyrica CR, Duloxetine and hydrocodone 5mg. Hydro has not been working well anymore so I'm applying for my medical marijuana card and will finally be making a change to cbd/thc. I also receive weekly lidocaine infusions which are limited in their relief as well and disappointing and inconsistent overall. Plasmapherisis would be next option and I'm told IVIG is off the table because Medicare won't cover it. Thanks for listening and again for the helpful information.
Together in perseverance! Be well.
Rachel