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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@jimhd

@katec I don't remember if I told you that after trying all but a few at the very bottom of the list, we hit on imipramine. I did experience some side effects as I slowly increased the dosage to where I am at 100mg, but my thinking is clear again. Sometimes I think that we don't give new meds enough time - both for the body to adjust to them so side effects subside, or for the medication to have time to begin reducing the pain. Sometimes I think that I should go back and retry some of those meds and give them that extra time, though not back to the ones that had really serious side effects, like the one that put me in the hospital. For now, though, I'll stick with Imipramine for as long as it does its job.

Your son is on our daily prayer lists.

Jim

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Replies to "@katec I don't remember if I told you that after trying all but a few at..."

@jimhd Thank you for the suggestion! I will mention that one as it isn’t one he’s tried before. I agree with you about going back to try meds. He was really young when we first started trying different meds and I think doctors were unsure about dosage, but now that he’s an adult weight I’d like to revisit some of those meds to see if they’ll bring him any relief! Thanks again!!

@jimhd imipramine is a great medicine.i've been on it for many years. unfortunately for me its not enough anymore. scared to take neurontin or lyrica but may not have choice.