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Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

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@katec

So far his only symptom, that we are aware of, is severe pain on the bottoms of his feet. It never goes away and is worse when weight bearing. Even just standing for a few minutes is brutally painful for him. We’ve done lots of testing make we can’t find anything quirky in his bloodwork that points to autoimmune to warrant the IVIG treatments. The docs are working on what’s next in his treatment, so that’s why I was wondering if anyone else has had a similar experience and finally did find something that lead them to the cause of the SFN. Thanks!

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Replies to "So far his only symptom, that we are aware of, is severe pain on the bottoms..."

I was diagnosed with SFN just a year ago. Burning sensation from my butt to my feet. Sometimes in my arms. I am on 3,000 mg of Gabapentin spread throughout the day. That’s a high dose but I tolerate it quite well. That has really helped tremendously. I have Fibromyalgia diagnosed 30 years ago so since that is an autoimmune issue I already had I think that’s what led to my diagnosis. BUT with all the bloodwork I have had, I’ve never had any indication of autoimmunity in my body so all diagnoses given have been based on symptoms alone.