← Return to Unknown Cause or Idiopathic SFN

Discussion

Unknown Cause or Idiopathic SFN

Neuropathy | Last Active: Jan 7, 2020 | Replies (120)

Comment receiving replies
@azza1

Hi @katec,
I am in the same situation like your son but I want to know what is the symptoms he has it right now . I did diagnose idiopathic SFP from 4 years. I can share you with my experience if you like . One doctor try to give me this offer ( IVIG ) while I was in Egpt . He told me , I cannot feel any progress until I get a third injection, and that is mean you have to wait for 3 months to see if there is any results.
I hope , the injection will help your son .
Thank you

Jump to this post


Replies to "Hi @katec, I am in the same situation like your son but I want to know..."

So far his only symptom, that we are aware of, is severe pain on the bottoms of his feet. It never goes away and is worse when weight bearing. Even just standing for a few minutes is brutally painful for him. We’ve done lots of testing make we can’t find anything quirky in his bloodwork that points to autoimmune to warrant the IVIG treatments. The docs are working on what’s next in his treatment, so that’s why I was wondering if anyone else has had a similar experience and finally did find something that lead them to the cause of the SFN. Thanks!