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DiscussionUnknown Cause or Idiopathic SFN
Neuropathy | Last Active: Jan 7, 2020 | Replies (120)Comment receiving replies
Replies to "Hi @katec, I am in the same situation like your son but I want to know..."
So far his only symptom, that we are aware of, is severe pain on the bottoms of his feet. It never goes away and is worse when weight bearing. Even just standing for a few minutes is brutally painful for him. We’ve done lots of testing make we can’t find anything quirky in his bloodwork that points to autoimmune to warrant the IVIG treatments. The docs are working on what’s next in his treatment, so that’s why I was wondering if anyone else has had a similar experience and finally did find something that lead them to the cause of the SFN. Thanks!