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Help asking doctor if this is small fiber neuropathy or something else
Neuropathy | Last Active: Dec 17, 2019 | Replies (55)Comment receiving replies
Hello @albeit -- I agree with @jeffrapp that as patients we can't tell you what tests for you to tell your doctor to order. There is another discussion that might be helpful when seeing a new doctor or specialist.
There are some good tips on seeing a new specialist or doctor by @roch here:
— https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/?pg=1#comment-240765
Hope you can come back and let us know the outcome of your appointment.
Replies to "Hello @albeit -- I agree with @jeffrapp that as patients we can't tell you what tests..."
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Hi John,
I subscribe to Consumer Lab which defines itself as an independent lab. They posted the following on B12. I know you are doing fine on the Facebook protocol but 40 drops of that liposomal B12 seems like a lot. Here is what Consumer Lab reported:
"Although no "Upper Tolerable Intake Level" has been established, there are risks associated with getting too much B-12 from supplements. At a dose of 500 mcg (one-sixth the amount in your supplement), an increased risk of colorectal cancer was reported in a placebo-controlled study of older people. Doses of just 20 mcg per day or higher have caused outbreaks of acne and rosacea . A high-dose B complex supplement (with 1,000 mcg of B-12) hurt, rather than helped, people with type 1 or type 2 diabetes and advanced kidney disease , resulting in a worsening of kidney function and an increase in the risk of heart attack, stroke and death.
In women who are pregnant, excessive blood levels of vitamin B-12 have been associated with an increased risk of autism in their children.
Taking some B-12 is advisable for people over the age of 50 (when you're less able to extract B-12 from food), as well as for those taking medications that interfere with B-12 absorption (such as Prevacid, Prilosec and metformin), strict vegetarians, alcohol and drug abusers, people recovering from surgery or burns, and those with bowel or pancreatic cancer. But the amount needed to avoid deficiency is small and nowhere near the amount in the supplement you describe in your B-complex.
If you decide to take a B-12 supplement, you may want to choose one that has the right dose for you and has been tested and Approved by ConsumerLab.com . Be aware that sublingual and dissolvable B-12 supplements often contain sugar substitutes that can cause gas, bloating, and diarrhea in some people -- particularly if taking multiple pills. You can use the Ingredients listings in CL's Review to spot and avoid these ingredients.
In general, it's best to avoid excessive doses of any vitamin if it is not needed."
What do you think?