Hello @timsdeece — I see that you recently joined Connect and would like to welcome you. I'm sorry you are having trouble trying to get a diagnosis and find a treatment that helps you. There is another discussion similar to yours where your post may receive more visibility with other members sharing similar symptoms. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion:
From your post I know that you have seen a lot of different doctors and specialists. Have you thought about getting a second option at a major teaching hospital or health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.