Hi @razzle50. Have you recently been diagnosed? You can find my journey with both Chiari and Syringomyelia within the link that @amandajro provided. I would love to hear your story.

Yes I have both just found out in August of 2019. I had chiari decompression surgery in September 2019 it’s been over a year since surgery and recent MRIs show the syrinx pictured above has shrank some, however the main issue for me continues to be pain! I have horrific back pain, and trying to find pain management that actually works is proving fruitless. Have you or anyone else found any medication or treatment that actually helped your back pain?

Hi and yes I have Syringomyelia but I allegedly don't have Chiari according to my doctor. I posted a little about myself on the previous page.