As for me, no Chari. Yes, I can relate to the pain. The belief is that mine started with a trauma about 10 years ago after being thrown from a horse. I am finding that most providers don't really know what to do with the condition, and really do not know how to deal with the pain. I have been seen by a very knowledgable physician on the condition in another city. I plan to follow the progression of the growths with regular visits to see him (probably semi-annually). I don't think most understand the intensity of the pain. I am unable to take NSAID medicines (which previously helped a lot) due to kidney issues, so Tylenol is about all that is left and really does nothing for me. I am involved in some trial procedures to help relieve lower back pain and will address the cervical and trunk area next. Maybe it will help, though it provides only relatively short-term relief involving some localized injections. I have had 4 MRI studies in the past 6 months dealing with it. Thank you "fitchizumi" for the informatoin on the project in your area as well as the contact information. Perhaps they have some information on options in my area. Again, thank you.