Hi I called an endocrinologist and the nurse said that limb swelling wasn't an issue for an endo. No other family members have had. I have Crohn's disease and it took me 5 years to get diagnosed -- had all the tests and nothing showed. Only symptom I had was partial blockage, which would send me to ER. Finally a new gastro suggested exploratory surgery and they found it. So knowing I was atypical in presentation with that, makes me wonder about this. My gastro was awesome but has retired. I might email him. He's literally a genius.

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