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Never Late

Just Want to Talk | Last Active: Oct 31, 2019 | Replies (26)

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@theshewolf1

My neurologist took the sheet of paper with my questions and copied it into my medical records. My memory isn’t as good as it used to be but I am sick of others judging me and trying to tell me what to do. My life is a never- ending nightmare on some days but it doesn’t mean I am a child or be talked to like one. I have been independent since 18 so please stop treating me like I am an invalid.

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Replies to "My neurologist took the sheet of paper with my questions and copied it into my medical..."

Sorry to hear about how you are treated. Read what I said about Hero’s in my last post. Sound like your experiencing that thing that happen to us when we return: everyone who wasn’t there tell you how to feel and to “ pick yourself up by your bootstraps “ if they only knew what that does to us inside maybe they’d just live you for being you! I’m here for you Twolf

@theshewolf1 First, thank you for your service. Then, welcome to Mayo Connect, if you haven't been welcomed to our big cyber table, yet. We are a caring group who offers support and shares our experiences. I am glad you write your questions down - I do, too, and it helps me focus. You're lucky when a medical professional copies your questions! Those of us who have been through harrowing events like active duty and other examples, have to just shake our heads when people say "get over it". Our very core is changed and it takes a lot of effort to revert back to "normal", if ever.
Ginger

@theshewolf1- I also welcome you to Mayo Connect. I have every single one of my labs results, ct scans and blood work. Anything that a doctor has in my file that I can get a hold of I have. After 22 years of lung cancer I have folders and folders. lol This way you can keelp track yourself and research any terms were not familiar to me. I became a better patient with this.
I agree, people don't stop to think how what they say can be very hurtful when they are just trying to help. Turning the question back on them might also be a tactic. Ask them how they would feel if that statement or question were aimed at them if they are seriously ill.
II was waiting in line about 22 years ago to check in with pre-op for my first lobectomy. The gal behind the desk asked who was with the gal trying to check in. The gal in the wheel chair said I'm a person and can hear you.
Maybe we all need to speak up more if walking away doesn't work. What do you think?

@theshewolf1 I am sorry that your neurologist treated you poorly. I think many doctors start out like that and then when they figure that you are reasonably competent they tone that down. I have a pretty good rapport when it comes to that with all of my doctors.
No one loves going to the doctor, but when the doctor is dismissive or treats you like you are incompetent it's 10 times worse. If the neurologist is still treating you that way you may want to consider a different neurologist. I had to see a neurologist a few times due to episodes of confusion which turned out to be metabolic, not neurologic. He was absolutely wonderful, one of my all time favorite doctors.

Are you seeing a neurologist for memory problems? If you indicated the purpose I must have missed that somehow.
JK