Hi T, so in all honesty I did not read the link you post on the first go around; now I read it and it shouldn’t be a surprise to you since you seem very insightful and perhaps you possess those qualities that I wish that I could find in a doctor.
Maybe the next thing to do is follow the suggestions on the link which would mean planning a trip to one of the Mayo Clinic’s or maybe to one in particular. I’m certainly willing to do that. But going back to some of my other posts about finding a doctor or hospital that first of all takes the low D seriously. I now live in the Raleigh-Durham area which is often called the research triangle. They boast about having some of the best most progressive ground breaking doctors and facilities. So why has it been so difficult getting a return call?
To go over all of my efforts and attempt to COMMUNICATE with any of my doctors has been maddening. I wonder if I can get a call back from the clinic listed in your link. I’m not asking for a freebie, over the phone DX I’d just like to find out before hand what exactly they would like to see. The VA facilities do not even communicate with each other so my records are all over the place and one of the things that I have been repeating over and over again including yesterday when I said to the private pcp: “ my concern, dare I say FEAR , is that I’ve been complaining about these symptoms for over a year and we do not know how long I’ve been D deficient because it was only a year ago ( almost to the day that the Florida VA did the blood work and they were so concerned that they asked me to return the next day The test were done again and they were the same. “ How long have I been this way and what if damage has resulted from a cavalier attitude be every facility and doctor? I still do not feel/think/see any provider regrouping. It seems like your goal is to get my D level to a normal range but no one knows how long it’s been going on. I’ve had this incredible memory and now stress bombards me with brain fog and blurred vision. My shrink actually laughed at me because all of the tests that they’ve done for vision problems come back normal so he told me this: “ honestly I think it’s all in your head and I’m afraid to tell you that I think you are pre-dementia and I’ve change your records and ordered competency tests. He communicated this to my private pcp ( my shrink is a VA psychiatrist ) the competency test was done last Friday. The nurse he administered the test was making faces as I answered all of the oral questions but after she read what I wrote down when she asked me to write a sentence was amazement! When the doc came in he said” not only did you hit the ball out of the park you knocked the cover off of the ball “ but he’s still dismissing much of what I tell him and even show him.
I’m admiring that this treatment or lack there of only makes matters worse.
The shrink actually called the suicide help line and they sent police to my Moms in Fl and to my house in NC and to make the story more interesting I was in the ER for the fourth time and second time in two days. Not for suicidal thought but because of killer stomach pains. The nurse warned me that if the cops decided to haul me off the the psych hospital there was nothing they could do, they’d need to release me. I lucked out and the officer who interviewed me was a Veteran. He informed me that the call is subjective and if the officer doesn’t want to deal with you off you go for up to a 72 hour hold. My officer asked me similar questions to the competency test and deemed me non-suicidal. 5 hours later I was admired and was at a new Cleveland clinic in a new level of wards, one below ICU but not regular ward. After reading everything I could find about low D it sounded like it was possible that I was there because of that. After 4 days the doc came in and suggested exploratory surgery. My nurse who was standing behind the doctor was shaking her head NO!!! So I said no and was told that they thought that I had a small bowel obstruction but want to go in to look around. My nurse said that she knew me better than the doc and she knew all of my tests and said it wasn’t clear so that was why they want to do exploratory which she said is always risky especially around the digestive system.
Thank you for that link and your help. Like my nurse I think people here listen better than many doctors. I need to find an endo here or travel to Mayo.

Any other feedback from anyone is welcome!!!

GRATEFULLY THANKFUL!