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Reoccurring unexplained loss of consciousness
Epilepsy & Seizures | Last Active: Apr 15, 2020 | Replies (22)Comment receiving replies
Previously when we weren't getting answers and doctors were dismissive as if I had passed out taking blood or something, we said if I had another one, we would take all of our test information and go to Mayo. We became so frustrated with time lost at work, high medical bills, and still no answers that we were rethinking going but now I think we really just need to do it. Thank you for your comment. I hope your son continues to do well and is feeling well.
Replies to "Previously when we weren't getting answers and doctors were dismissive as if I had passed out..."
Hi, @sdneb44 - if you are considering going to Mayo Clinic for an opinion, you may use this contact link for requesting an appointment http://mayocl.in/1mtmR63.
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@sdneb44
Being the expert i’m not, I'm curious why the doc wanted a sleep study. Normally there aren't near the number of EEG electrodes. I would think an ambulatory EEG for 24-48 hours would be more beneficial and may have better insurance coverage.
When I was a kid a
friend(?) hit me in the head with a bat. I've always wondered if that caused my seizures. They claim symptoms usually show up rather soon after a concussion but they can occasionally show up years later. I don't buy into the brain injury timelines that many doctors do.
The one thing scientists understand about the brain is how little they actually do know about it.
I had episodes of syncope too and the manifestations of syncope was nothing like seizure activity at least in my case.
The Mayo Clinic Epilepsy Center is a level 4 Center and is ranked #1 in the Country.
Epilepsy Centers locations
https://www.naec-epilepsy.org/about-epilepsy-centers/find-an-epilepsy-center/all-epilepsy-center-locations/
Here is a webcast done earlier today.
https://connect.mayoclinic.org/webinar/video-qa-about-epilepsy/
I hope you will keep us informed. I'm very interested in your outcome. If I was having the symptoms you are, I'd ask the doctor if I had TLE (Temporal Lobe Epilepsy)
Health & Happiness,
Jake