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Reoccurring unexplained loss of consciousness

Epilepsy & Seizures | Last Active: Apr 15, 2020 | Replies (22)

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@sdneb44

Jake,
Thank you for your response. My auras are nearly the same every time, I am constantly smelling things that no one else smells, burnt toast, or burning things as well as other things. I also had been talking to the step father of a friend and he has epilepsy as well. He said the same thing about the normal test results. The doctor who wanted to put me on seizure medication seemed to not be sold on it being seizures but said it possibly could be. I don't remember him saying anything about focal seizures, but I am only a few days out from a "syncopal episode" is what they are being called, so I am struggling to fully remember still. The neurologist that overruled kept having tests administered on me without any other suggestions. I was supposed to do a sleep study but they wanted $1400 up front even with good insurance and we couldn't afford to do it.

I had two pretty major concussions when in my teens, one I was hospitalized for that the doctors ask about but think it has been a really long time to have effects from it now.

I did mean EEG, thank you for catching that. Thank you for your advice. It has been a frustrating and disheartening journey. I appreciate you sharing this information with me.

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Replies to "Jake, Thank you for your response. My auras are nearly the same every time, I am..."

I can only speak through my son's journey, diagnosis at 17 yrs. They thought it was fainting & concussion related for months. He also has aura's before his seizure. We were lucky to get 2nd opinion at Mayo. A seizure medication has helped him function again in life and decrease fear of unexpected auras. His only happen once every few months. Do you have level 4 neuro clinic for consult?
Jennifer