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Reoccurring unexplained loss of consciousness
Epilepsy & Seizures | Last Active: Apr 15, 2020 | Replies (22)Comment receiving replies
@sdneb44
Hi there,
I've had Epilepsy for 52 years so I usually think in that realm. When I hear symptomatology like you describe it certainly sounds like it could be some type of seizure activity.
Are your Auras always the same or nearly the same?
Do you ever have an odd taste, hear voices, see lights or things that aren’t there, smell unusual odor?
The problem with Epilepsy is every test can be negative but you can still have a seizure disorder. Unfortunately, there are some doctors who feel if your tests are normal your not experiencing seizures.
You have described all phases of seizure activity, Aura, Ictal (Actual Seizure) Postictal.
Did the doctor who wanted to put you on meds ever mention possible Focal seizures?
If you Neurologist who overruled the Seizure medication didn't think you were experiencing seizure activity, what was his/her diagnosis or explanation as to what was going on. You might consider going back to that doctor or another Neurologist or ask your Primary Care Physician about being referred to an Epileptologist.
Wishing you well,
Jake
Replies to "@sdneb44 Hi there, I've had Epilepsy for 52 years so I usually think in that realm...."
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Jake,
Thank you for your response. My auras are nearly the same every time, I am constantly smelling things that no one else smells, burnt toast, or burning things as well as other things. I also had been talking to the step father of a friend and he has epilepsy as well. He said the same thing about the normal test results. The doctor who wanted to put me on seizure medication seemed to not be sold on it being seizures but said it possibly could be. I don't remember him saying anything about focal seizures, but I am only a few days out from a "syncopal episode" is what they are being called, so I am struggling to fully remember still. The neurologist that overruled kept having tests administered on me without any other suggestions. I was supposed to do a sleep study but they wanted $1400 up front even with good insurance and we couldn't afford to do it.
I had two pretty major concussions when in my teens, one I was hospitalized for that the doctors ask about but think it has been a really long time to have effects from it now.
I did mean EEG, thank you for catching that. Thank you for your advice. It has been a frustrating and disheartening journey. I appreciate you sharing this information with me.