Hello @sdneb44, I'm glad that @lisalucier invited me to this discussion. While I've not had spells just like yours I have certainly had hard-to-diagnose neurological problems that have taken a number of years to arrive at a diagnosis. While we cannot make a diagnosis on Mayo Connect, we can certainly stand with you and support you while you work at getting a diagnosis to this troubling symptom.

Have you seen a neurologist who specializes in seizures?