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MAC Treatment: When will I see side effects?

MAC & Bronchiectasis | Last Active: May 29, 2022 | Replies (46)
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@kathyhg

Hi,
That was a question I had when I started the big 3 as well. I developed ototoxicity after about 6 months on the medication. One day I woke up to terrible tinnitus (on testing, I also had some hearing loss). It was likely from the azithromycin but I stopped everything.

That was 2 months ago and I’m still off the medications and continue to be fairly well, using a nebulizer with saline every morning, followed by a number of lung clearing exercises and use of an Aerobika.

Good luck to both of you!

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Replies to "Hi, That was a question I had when I started the big 3 as well. I..."
derbeltal | @derbeltal | Oct 31, 2019

Thanks. Knowing what others are experiencing really helps.

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Tina Sims | @tinaesims | Nov 3, 2019

Do you have to go off all meds if you have tinnitus?

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Terri Martin, Volunteer Mentor | @windwalker | Jun 14, 2020

Hi Kathy! How are you doing these days? I just had my annual Mayo visit and the new dr gave me a script to get an Aerobika. Do you feel that using it has made a difference for you in getting stuff up and out of the lungs? I haven't ordered mine yet.

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