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Small Fiber Neuropathy lecture
Neuropathy | Last Active: Sep 24 7:36pm | Replies (13)Comment receiving replies
I would like to add, for all of you idiopathic patients, that Dr. Oaklander does not believe ithere is such thing as idiopathic. I suppose it's all in the resources available to each person in their respective areas and how far they are willing to pursue (travel) for answers. She is also a Dr who is making it her mission to research and find answers and ways to help regenerate nerve growth verses masking their dysfunctional pains. An interesting aspect of her knowledge and findings involves youth. More adolescents are being diagnosed with SFN and they have not yet had chance to develop underlying causes. Dr. Oaklander focuses heavily on autoimmune deficiency in this case. She explains well and is relatable. If it were only easy to be her patient I'd be there in heart beat!
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@rwinney It is easy! I travelled from Texas to Boston to see her. I received a lot of help. She also practices and licensed in three other states. I learned from Dr Oaklander herself. She is amazing! Mine is autoimmune. I have lupus, sojourns, mixed connective tissue disease, hashimotos. She believes I got SFN and severe axonal sensorimotor dysautonomia peripheral polyneuropathy from mrsa bacterial spinal meningitis in 2002. She helped me get on panzyga IVIG and it helped turn my life around. I saw her about a year and half ago. I still see her occasionally. I was on IVIG from age 7-18. Dr Oaklander told me if I would have stayed on it I wouldn’t be in the shape I am in now. My nerve conduction last time checked was 1.1.Normal nerve conduction 7.5.