← Return to Waiting for scan results. Is this part of scanxiety?

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@azkidney57

<p>No matter what cancer someone has the anticipation, the “scanxiety” is there for all of us. I am into my 5 th month as a kidney cancer patient. I had my right kidney removed May 2019. Much has happened in those 5 months. I just received my scan results. I had an MRI abdomen/ pelvis and a CT of chest and I am cancer free at the moment. I am grateful I don’t have cancer but I have many months to go. I am under “surveillance “. I had anxiety prior to scanning, during the scans, then waiting for results. Not fun! This business of having cancer takes an emotional toll. For me I had the added stress of a cancer center which has not and did not inform me of my results in a timely manner. It seems if you have a localized disease many patients experience this slowness of response. Patients are under great duress as they wait for results. I am the one who ultimately got a hold of my own scan results. I had been waiting to hear from my cancer center and it was a struggle to get someone to call me. A nurse did finally call but I had a copy of my results before her call. I am disappointed with my cancer center! I have been disappointed! I have found them, my cancer team, slow to response in general. There is only one person at my cancer center who is not a direct part of “my team” who advocates for me. This nurse is my “go to person. I am grateful for her continued support. So as a cancer patient I am learning much. Biggest thing I have learned; a patient has to constantly adovate for themselves or have someone to do it for them! At this point my new concern is what if I develop cancer. What if I become ill, weak and sick? How responsive can I expect my “cancer team” to be. I am not impressed them. I have lost trust. The very first oncologist I met left shorty after I became his patient. Not anyone’s fault. I felt shuffled around. The second oncologist chosen for me was younger and more “inexperienced “. That made me nervous. I went to the Mayo Clinic at a near by city, a 2 hr drive away. I saw an expert renal cancer specialist. My experience with the Mayo Clinic was different. I was impressed with the Mayo Clinic and oncologist I saw. I am seriously considering moving to this city to be closer to the doctor. I have not been so impressed with the cancer center where I go now! My new oncologist is more experienced but I have lost “trust”. I feel nervous once again and my gut is telling me to take “action”! Moving to another city would take time. Many things to consider. I work full time and care for my elderly mom who is frankly healthier than I am. I am under so my stress right now it hurts! I have lost weight from stress! There is so much I have to deal with all the time I feel under duress! If the cancer doesn’t kill me the stress will! I will need to seek help for my stress. I really can’t handle all this on my own. I feel like I am drowning! I have to tell myself that I am okay. I don’t have cancer right now. I need to stay focused so I can be strong for whatever lies ahead! I will be fighting more battles. I must remain strong while I am still healthy enough! Sound familiar?</p>

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Replies to "No matter what cancer someone has the anticipation, the “scanxiety” is there for all of us...."

@azkidney57- First off and big yay, yay, yay. Cancer free right now is a 100% positive thing! Secondly hear hear on how you are advocating for yourself and phrasing it beautifully. If you can, I vote for making the move. I travel over 1 hr to get to MGH for my treatments, tests, scans etc. If your illness deams it necessary to be closer than don't hesitate. Other than your cancer are there other outside factors that are stressing you out that you can change>