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@cindylb

The AI drugs and Tamoxifen are notorious for side effects with many women. I think we all feel it must be 'just me'....but no. I also suppose that there are many women out there who never go on these support sites because they can take the drugs to no ill effect. It's not your imagination that these drugs can have powerful and disabling side effects. I was unable to take any of them but then, I have side effects from many, many drugs so I'm very limited. I was fortunate to be only Stage 1 and I'm 61 years old (almost 62), so that's quite different than 33 years old......My body has already given up the hormone fight. But the drugs don't only remove those pesky hormones......they do something else and I've done what research I can and I don't understand what else they do to our bodies, but sometimes it's just not worth the extra pain.
Since I couldn't take the drugs I lost weight, changed how I ate (although I was always a pretty good eater), added some supplements including Vitamin D, etc with the blessing of my doctors. The effect was .............I have so reduced my hormones that now I'm having issues with having too little. I know.......really? In fact, I am now using a vaginal estrogen cream because my vagina is falling out due to atrophy. The hormone saga continues. The same doctors who wanted me to reduce my hormones are putting them back in now.
We're all different but the pain and side effects from these drugs are real for many of us. The decisions are hard, the journey is hard but everyone must listen to their own bodies and make peace with the trade offs.

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Replies to "The AI drugs and Tamoxifen are notorious for side effects with many women. I think we..."

Thank you, Cindy. This site has helped me so many times to understand that It isn't just me reacting to these Estrogen blockers. There is so much helpful advice and relating of experiences. A huge thank you to all of you.

@cindylb
I can so relate. Anastrozole has made me lose weight, despite doing nothing differently... about a pound or so a month. My oncologist is frustrated not understanding the cause of the weight loss. I have noted that I have another friend who had the same reaction to it, but he dismisses the anecdote. I don't mind the weight loss for the time being, but in another year, it may be just too much... and then what?