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Aching legs from Small Fiber Neuropathy

Neuropathy | Last Active: Dec 1, 2023 | Replies (140)

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@rwinney

In light of this post and a few others of mine, heres my update:

Went to my existing Neuro for additional relief options and questioned plasmapherisis and IVIG. He said, auto immune doesn't line up with my case (based on last years spinal tap) however offered to send me to his colleague as I had requested updated EMG/Nerve Conduction study (last done 2 years ago).

After the 2 drs reviewed my case...I was told again that I don't line up for IVIG (immune deficiency) however, they will oblige me by conducting a new study. I asked, how about plasmapherisis then??? The response I received was, let's just do the new study first.

Who knows...the muscle weakness through my whole body has declined and not that I want to go through the miserable test again, I feel it should be ruled out. Maybe it'll be fine and my weakness is simply SFPN.

Questions for anyone out there...

1. Have you had EMG/Nerve Conduction study results change over time and become positive after a re-do?

2. Have you received plasmapherisis and what were your results?

Thank you
Rachel

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Replies to "In light of this post and a few others of mine, heres my update: Went to..."

Rachel, I will be having repeat EMG tests run on my leg and arm in April. Last done 7 years ago. Will let you know how my results compare.